figmo: Baby Grace and Lynn (Default)
[personal profile] figmo
For those of you who hadn't heard, despite my best efforts, I suffered mushroom poisoning last Sunday night at dinner. Folks who were at the Consonance Sunday dinner run two years ago are correctly thinking "Deja vu all over again."

We kept telling the restaurant "no mushrooms." The waiter and even the manager kept insisting there were "no mushrooms" in the egg roll I'd just eaten -- even after we showed them the huge shiitake cap from it. They kept insisting the shiitake was a tree ear (ha!).

Brett Glass gave me two Benadryl capsules to pop, and Mary Creasey whisked me to PAMC's Urgent Care (faster, better, and cheaper than a hospital emergency room, and it was early enough I could go there). I was released only after being injected with solumedrol, benadryl, and three needles of epinephrine -- and strict orders to immediately fill the prescriptions I'd been given. This doctor gave no reassurances I'd be okay.

The worst of the prescriptions is prednisone. That stuff is nasty. We're talking PMS in a pill. I've been extra niggly about monitoring my diet because prednisone tends to cause really nasty mood swings, and right now I can't afford that. It also trashes your sleep patterns. I've already got a con and contracts doing that to me...plus what's about to happen to Warren.

Tomorrow I haul Warren to San Francisco so he can get 29 electrodes attached for a 24-hour EEG. He will have a button to push when one of his seizures is starting so they can compare data to what goes on in his system. He has told me I'll likely have to stay up and monitor him. So much for sleep....

Sunday, of course, is my radio shift. I take him back to SF Saturday to get the electrodes removed. I then get a little time to maybe sleep. Then I have to be minty-fresh from noon to 6pm for the time I'm on air.

Somewhere in the midst of all this I have contracts to wrap up.

Date: 2003-03-13 04:01 pm (UTC)
kshandra: A cross-stitch sampler in a gilt frame, plainly stating "FUCK CANCER" (Default)
From: [personal profile] kshandra
The worst of the prescriptions is prednisone. That stuff is nasty. We're talking PMS in a pill.

You got that right, sistah. D'you get the manic energy bursts, too? (I fully intend to spend a large chunk of this weekend hiding at [livejournal.com profile] dafydd's condo, lest [livejournal.com profile] gridlore successfully fit me into one of the moving boxes we got last weekend....)

Tomorrow I haul Warren to San Francisco so he can get 29 electrodes attached for a 24-hour EEG. He will have a button to push when one of his seizures is starting so they can compare data to what goes on in his system. He has told me I'll likely have to stay up and monitor him.

Um, yeah.... I don't know about Warren (and I do understand that the triggers are wildly different in the two cases), but I think Doug has had advance warning once in the eight years he's been having seizures. I'm more than a little boggled that a medical organization allegedly experienced in dealing with neurological dysfunction would put any sort of faith in a system like that.

Good luck....

Date: 2003-03-13 10:51 pm (UTC)
From: [identity profile] figmo.livejournal.com
No manic energy bursts. I'm drained from the epinephrine and the con. I haven't had a decent night's sleep because of my contracts.

Warren's seizures are of the "partial complex" variety. He is fully conscious when they occur, and he can feel them coming on.

OTOH, Doug's seizures, IIRC, have a very different cause than Warren's. We know what's causing Warren's. The sickening part is the fix is relatively easy, but the damned doctors keep making excuses to not fix him.

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